In this episode of the People Who Read People podcast, I interview Jamie Heywood (his Wikipedia page), about the benefits and challenges of conducting medical/health research using crowdsourcing of real-world, patient-reported data directly from the public. Heywood got his start on this career path when his brother was diagnosed with ALS; Jamie wanted to do everything he could do to maximize Stephen’s chance of survival. Jamie started ALS TDI to research and test treatments for ALS. Later, Jamie was co-founder and CEO of PatientsLikeMe, a platform for collecting real-world medical data directly from patients and giving them a network to share learnings about their conditions and treatments. He also is co-founder of biotech company AOBiome.
In this interview, Heywood discusses the strengths and challenges of big-data approaches to collecting medical data from the public, why such tactics haven’t been as revolutionary or mainstream as the potential suggests, and thoughts on healthcare challenges we face in general. Episode links:
- Apple Podcasts (embedded below)
- Spotify
Topics discussed include: